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Raising a child with imperforate anus

Did you know? Imperforate anus is another form of disability in the social context.

The mere mention of the word “disability” often sparks misconceptions and superstitions, with some attributing it to supernatural forces, curses or punishment for past sins and wrongdoings.

According to the World Health Organization (WHO), an estimated 2 million women and men in Zambia live with a disability, including mental disorders.Imperforate anus is a birth defect in which the anus lacks a proper opening.

It is also referred to as an anal malformation which is also a rare form of disability.

Doctors have limited knowledge about the exact causes of this problem, which is a rare condition. It is typically diagnosed shortly after birth when a baby fails to pass stool within 48 hours.

However, the condition can be treated through staged surgical procedures performed by surgeons and other specialized medical personnel at an appropriate age.

Masiliso Maoma, a 32-year-old woman from Kabanana compound in Lusaka, gave birth to a baby boy with a closed anus.

Ms. Maoma shared some of the challenges she faces, highlighting how society has made the situation even more difficult for her.

While trying to seek help from well-wishers, she tearfully explained how her family did not support her during this difficult time.

Meanwhile, Ian Banda, Director for Youth in Action for Disabilities, emphasized the need for society to embrace people living with disabilities by being inclusive and offering support.

“There is a need for the government to provide necessary support and take action for people living with disabilities, including those with imperforate anus, by supplying stoma bags and sanitary diapers, among other necessities,” Mr. Banda said.

“Society must change its attitude towards people with disabilities, as negative perceptions continue to act as barriers to social participation.”

The persistent tendency to view these conditions through a lens of misconception has discouraged many people from seeking help often due to low literacy levels.

Written by Felistus Kombe.

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